Mom experimented.

It is who she was, and underneath the fog and movement impairment, it is still who she is. The last provider that believed she had decision making authority emphasized to me that she would not experiment on mom. It took a small miracle for the court to declare that, as mom’s daughter and guardian, I could execute decision making on mom’s behalf. What that well intentioned provider did not understand was that she was denying mom’s right to have her lifestyle and choices honored and upheld.

So, with mom’s participation to the extent she is able, we are retracing her path with insights from science that are revelatory to myself and others in the family. Her quacky-ness was more solidly based on science than even she knew. Although anecdotal at the time, new research gives coherency to her narrative. I hope to present some of what we have learned and are applying in an easy to understand format. So much is lost to everyday wisdom when it is solely couched in clinical and/or medical languages.